Anxiety, concerns and COVID-19: Cross-country perspectives from families and individuals with neurodevelopmental conditions

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MetadadosDescriçãoIdioma
Autor(es): dc.contributorUCL’s Faculty of Education and Society-
Autor(es): dc.contributorUniversity of Geneva-
Autor(es): dc.contributorUniversity of Miami-
Autor(es): dc.contributorAutism Center of Excellence-
Autor(es): dc.contributorShahid Beheshti University-
Autor(es): dc.contributorUniDistance Suisse-
Autor(es): dc.contributorCenter for Psychiatry Research-
Autor(es): dc.contributorAutism Spectrum Australia-
Autor(es): dc.contributorUniversidad Autónoma de Madrid-
Autor(es): dc.contributorUniversity of Medicine and Pharmacy “Victor Babes” Timisoara-
Autor(es): dc.contributorUniversity of Luxembourg-
Autor(es): dc.contributorBambino Gesù Children’s Hospital-
Autor(es): dc.contributorLyon University Hospital-
Autor(es): dc.contributorUniversity of Fribourg-
Autor(es): dc.contributorCHU Dijon-
Autor(es): dc.contributorCNRS-
Autor(es): dc.contributorMichigan State University-
Autor(es): dc.contributorUniversity of Lausanne-
Autor(es): dc.contributorCabinet office-
Autor(es): dc.contributorIndian Institute of Technology Bombay-
Autor(es): dc.contributorStanford University-
Autor(es): dc.contributorReference Centre for Developmental Disorders Centre East-
Autor(es): dc.contributorMasaryk University-
Autor(es): dc.contributorUniversidade Estadual Paulista (UNESP)-
Autor(es): dc.contributorSlovak Academy of Sciences-
Autor(es): dc.contributorUniversity of Wisconsin-Milwaukee-
Autor(es): dc.contributoreMbrace-
Autor(es): dc.contributorUniversity of Siena-
Autor(es): dc.contributorUniversidad Nacional de Educación a Distancia (UNED)-
Autor(es): dc.contributorUniversity of Pennsylvania Perelman School of Medicine-
Autor(es): dc.contributorUniversity of Warwick-
Autor(es): dc.contributorWilliams Syndrome Association-
Autor(es): dc.contributorUniversity Medical Centre Göttingen-
Autor(es): dc.contributorUniversity of Applied Sciences Zittau / Görlitz-
Autor(es): dc.contributorUniversity of Edinburgh-
Autor(es): dc.contributorDurham University-
Autor(es): dc.contributorUCBL1-
Autor(es): dc.contributorEast China Normal University-
Autor(es): dc.contributorMary Immaculate College-
Autor(es): dc.contributorMarquette University-
Autor(es): dc.contributorUniversidade de Évora-
Autor(es): dc.contributorAPHP.NUP Robert DEBRE University Hospital-
Autor(es): dc.contributorCatholic University-
Autor(es): dc.contributorMedical University of Vienna-
Autor(es): dc.creatorSideropoulos, Vassilis-
Autor(es): dc.creatorVan Herwegen, Jo-
Autor(es): dc.creatorMeuleman, Ben-
Autor(es): dc.creatorAlessandri, Michael-
Autor(es): dc.creatorAlnemary, Faisal M-
Autor(es): dc.creatorRad, Jamal Amani-
Autor(es): dc.creatorLavenex, Pamela A Banta-
Autor(es): dc.creatorBolshakov, Nikita-
Autor(es): dc.creatorBölte, Sven-
Autor(es): dc.creatorBuffle, Paulina-
Autor(es): dc.creatorCai, Ru Y-
Autor(es): dc.creatorCampos, Ruth-
Autor(es): dc.creatorChirita-Emandi, Adela-
Autor(es): dc.creatorCosta, Andreia P-
Autor(es): dc.creatorCostanzo, Floriana-
Autor(es): dc.creatorDes Portes, Vincent-
Autor(es): dc.creatorDukes, Daniel-
Autor(es): dc.creatorFaivre, Laurence-
Autor(es): dc.creatorFamelart, Nawelle-
Autor(es): dc.creatorFisher, Marisa H-
Autor(es): dc.creatorGamaiunova, Liudmilla-
Autor(es): dc.creatorGiannadou, Aikaterini-
Autor(es): dc.creatorGupta, Rashmi-
Autor(es): dc.creatorHardan, Antonio Y-
Autor(es): dc.creatorHoudayer-Robert, Françoise-
Autor(es): dc.creatorHrncirova, Lenka-
Autor(es): dc.creatorIaochite, Roberto Tadeu-
Autor(es): dc.creatorJariabkova, Katarina-
Autor(es): dc.creatorKlein-Tasman, Bonita P-
Autor(es): dc.creatorLavenex, Pierre-
Autor(es): dc.creatorMalik, Supriya-
Autor(es): dc.creatorMari, Francesca-
Autor(es): dc.creatorMartinez-Castilla, Pastora-
Autor(es): dc.creatorMenghini, Deny-
Autor(es): dc.creatorNuske, Heather J-
Autor(es): dc.creatorPalikara, Olympia-
Autor(es): dc.creatorPapon, Anouk-
Autor(es): dc.creatorPegg, Robin S-
Autor(es): dc.creatorPouretemad, Hamidreza-
Autor(es): dc.creatorPoustka, Luise-
Autor(es): dc.creatorProsetzky, Ingolf-
Autor(es): dc.creatorRenieri, Alessandra-
Autor(es): dc.creatorRhodes, Sinead M-
Autor(es): dc.creatorRiby, Deborah M-
Autor(es): dc.creatorRossi, Massimiliano-
Autor(es): dc.creatorSadeghi, Saeid-
Autor(es): dc.creatorSu, Xueyen-
Autor(es): dc.creatorTai, Claire-
Autor(es): dc.creatorTran, Michel-
Autor(es): dc.creatorTynan, Fionnuala-
Autor(es): dc.creatorUljarević, Mirko-
Autor(es): dc.creatorVan Hecke, Amy V-
Autor(es): dc.creatorVeiga, Guida-
Autor(es): dc.creatorVerloes, Alain-
Autor(es): dc.creatorVicari, Stefano-
Autor(es): dc.creatorWerneck-Rohrer, Sonja G-
Autor(es): dc.creatorZander, Eric-
Autor(es): dc.creatorSamson, Andrea C-
Data de aceite: dc.date.accessioned2025-08-21T17:37:05Z-
Data de disponibilização: dc.date.available2025-08-21T17:37:05Z-
Data de envio: dc.date.issued2025-04-29-
Data de envio: dc.date.issued2022-12-31-
Fonte completa do material: dc.identifierhttp://dx.doi.org/10.7189/JOGH.13.04081-
Fonte completa do material: dc.identifierhttps://hdl.handle.net/11449/307073-
Fonte: dc.identifier.urihttp://educapes.capes.gov.br/handle/11449/307073-
Descrição: dc.descriptionBackground The COVID-19 pandemic had a major impact on the mental health and well-being of children with neurodevelopmental conditions (NDCs) and of their families worldwide. However, there is insufficient evidence to understand how different factors (e.g., individual, family, country, children) have impacted on anxiety levels of families and their children with NDCs developed over time. Methods We used data from a global survey assessing the experience of 8043 families and their children with NDCs (mean of age (m) = 13.18 years, 37% female) and their typically developing siblings (m = 12.9 years, 45% female) in combination with data from the European Centre for Disease Prevention and Control, the University of Oxford, and the Central Intelligence Agency (CIA) World Factbook, to create a multilevel data set. Using stepwise multilevel modelling, we generated child-, family and country-related factors that may have contributed to the anxiety levels of children with NDCs, their siblings if they had any, and their parents. All data were reported by parents. Results Our results suggest that parental anxiety was best explained by family-related factors such as concerns about COVID-19 and illness. Children’s anxiety was best explained by child-related factors such as children’s concerns about loss of routine, family conflict, and safety in general, as well as concerns about COVID-19. In addition, anxiety levels were linked to the presence of pre-existing anxiety conditions for both children with NDCs and their parents.Conclusions The present study shows that across the globe there was a raise in anxiety levels for both parents and their children with NDCs because of COVID-19 and that country-level factors had little or no impact on explaining differences in this increase, once family and child factors were considered. Our findings also highlight that certain groups of children with NDCs were at higher risk for anxiety than others and had specific concerns. Together, these results show that anxiety of families and their children with NDCs during the COVID-19 pandemic were predicted by very specific concerns and worries which inform the development of future toolkits and policy. Future studies should investigate how country factors can play a protective role during future crises.-
Descrição: dc.descriptionNational Institutes of Health-
Descrição: dc.descriptionDepartment of Psychology and Human Development IOE UCL’s Faculty of Education and Society-
Descrição: dc.descriptionSwiss Center for Affective Sciences University of Geneva-
Descrição: dc.descriptionDepartment of Psychology University of Miami-
Descrição: dc.descriptionAutism Center of Excellence-
Descrição: dc.descriptionDepartment of Cognitive Modeling Institute for Cognitive and Brain Sciences Shahid Beheshti University-
Descrição: dc.descriptionFaculty of Psychology UniDistance Suisse-
Descrição: dc.descriptionCenter of Neurodevelopmental Disorders at Karolinska Institutet (KIND) Center for Psychiatry Research Department of Women’s and Children’s Health-
Descrição: dc.descriptionLaboratory of Sensori-Motor Affective and Social Development Faculty of Psychology and Educational Sciences University of Geneva-
Descrição: dc.descriptionAspect Research Centre for Autism Practice Autism Spectrum Australia-
Descrição: dc.descriptionDepartment of Basic Psychology Faculty of Psychology Universidad Autónoma de Madrid-
Descrição: dc.descriptionDepartment of Microscopic Morphology – Genetics Center of Genomic Medicine University of Medicine and Pharmacy “Victor Babes” Timisoara-
Descrição: dc.descriptionDepartment of Behavioural and Cognitive Sciences University of Luxembourg-
Descrição: dc.descriptionChild and Adolescents Neuropsychiatry Unit Bambino Gesù Children’s Hospital-
Descrição: dc.descriptionNational Reference Center for Intellectual Disabilities of Rare causes Lyon University Hospital-
Descrição: dc.descriptionInstitute of Special Education University of Fribourg-
Descrição: dc.descriptionCentre de Génétique et Centre de Référence Anomalies du Développement et Syndromes Malformatifs FHU TRANSLAD INSERM UMR1231 Hôpital d’Enfants CHU Dijon, Cedex-
Descrição: dc.descriptionLaboratory CLLE University of Toulouse CNRS-
Descrição: dc.descriptionDepartment of Counselling Educational Psychology & Special Education Michigan State University-
Descrição: dc.descriptionInstitute for Social Sciences of Religions University of Lausanne-
Descrição: dc.descriptionCabinet office-
Descrição: dc.descriptionCognitive and Behavioural Neuroscience Laboratory Department of Humanities and Social Sciences Indian Institute of Technology Bombay, Powai, Maharashtra-
Descrição: dc.descriptionDepartment of Psychiatry and Behavioural Sciences Stanford University, Stanford-
Descrição: dc.descriptionGenetics Department Reference Centre for Developmental Disorders Centre East-
Descrição: dc.descriptionDepartment of Special and Inclusive Education Faculty of Education Masaryk University-
Descrição: dc.descriptionDepartment of Education Sao Paulo State University (UNESP)-
Descrição: dc.descriptionInstitute for Research in Social Communication Slovak Academy of Sciences-
Descrição: dc.descriptionUniversity of Wisconsin-Milwaukee-
Descrição: dc.descriptionLaboratory of Brain and Cognitive Development Institute of Psychology University of Lausanne-
Descrição: dc.descriptioneMbrace-
Descrição: dc.descriptionMedical Genetics University of Siena-
Descrição: dc.descriptionDepartment of Developmental and Educational Psychology Universidad Nacional de Educación a Distancia (UNED)-
Descrição: dc.descriptionPenn Center for Mental Health University of Pennsylvania Perelman School of Medicine-
Descrição: dc.descriptionDepartment of Education Studies Faculty of Social Sciences University of Warwick-
Descrição: dc.descriptionWilliams Syndrome Association-
Descrição: dc.descriptionDepartment of Cognitive Psychology Institute for Cognitive and Brain Sciences Shahid Beheshti University-
Descrição: dc.descriptionDepartment of Child and Adolescent Psychiatry and Psychotherapy University Medical Centre Göttingen-
Descrição: dc.descriptionFaculty of Social Sciences University of Applied Sciences Zittau / Görlitz-
Descrição: dc.descriptionCentre for Clinical Brain Sciences University of Edinburgh-
Descrição: dc.descriptionDepartment of Psychology Centre for Neurodiversity & Development Durham University-
Descrição: dc.descriptionService de génétique HCL INSERM U1028 CNRS UMR5292 CRNL GENDEV Team UCBL1-
Descrição: dc.descriptionDepartment of Early Childhood Education Faculty of Education East China Normal University-
Descrição: dc.descriptionFaculty of Education Mary Immaculate College-
Descrição: dc.descriptionDepartment of Psychology Marquette University-
Descrição: dc.descriptionComprehensive Health Research Centre (CHRC) Departamento de Desporto e Saúde Escola de Saúde e Desenvolvimento Humano Universidade de Évora-
Descrição: dc.descriptionDepartment of Genetics APHP.NUP Robert DEBRE University Hospital-
Descrição: dc.descriptionDepartment of Life Sciences and Public Health Catholic University-
Descrição: dc.descriptionDepartment of Child and Adolescent Psychiatry Medical University of Vienna-
Descrição: dc.descriptionDepartment of Education Sao Paulo State University (UNESP)-
Descrição: dc.descriptionNational Institutes of Health: K01MH120509-
Idioma: dc.languageen-
Relação: dc.relationJournal of Global Health-
???dc.source???: dc.sourceScopus-
Título: dc.titleAnxiety, concerns and COVID-19: Cross-country perspectives from families and individuals with neurodevelopmental conditions-
Tipo de arquivo: dc.typelivro digital-
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