A palliative care goals model for people with dementia and their family: Consensus achieved in an international Delphi study

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Autor(es): dc.contributorKyoto University-
Autor(es): dc.contributorEast London NHS Foundation Trust-
Autor(es): dc.contributorQueen Mary University London-
Autor(es): dc.contributorUniversidade Estadual Paulista (UNESP)-
Autor(es): dc.contributorTohoku University Graduate School of Medicine-
Autor(es): dc.contributorUniversity College London-
Autor(es): dc.contributorUniversity of Porto (ESEP/CINTESIS)-
Autor(es): dc.contributorMcMaster University-
Autor(es): dc.contributorUniversity Hospital of Cologne-
Autor(es): dc.contributorTechnological University of the Shannon: Midlands Midwest-
Autor(es): dc.contributorNational Ageing Research Institute-
Autor(es): dc.contributorThe University of Melbourne-
Autor(es): dc.contributorTilburg University-
Autor(es): dc.contributorMaastricht University-
Autor(es): dc.contributorLiving Lab in Ageing and Long-Term Care-
Autor(es): dc.contributorSittard-Geleen-
Autor(es): dc.contributorLeiden University-
Autor(es): dc.contributorLeiden University Medical Center-
Autor(es): dc.contributorRadboud University-
Autor(es): dc.contributorKing’s College London-
Autor(es): dc.creatorNishimura, Mayumi-
Autor(es): dc.creatorHarrison Dening, Karen-
Autor(es): dc.creatorSampson, Elizabeth L-
Autor(es): dc.creatorVidal, Edison Iglesias de Oliveira-
Autor(es): dc.creatorNakanishi, Miharu-
Autor(es): dc.creatorDavies, Nathan-
Autor(es): dc.creatorAbreu, Wilson-
Autor(es): dc.creatorKaasalainen, Sharon-
Autor(es): dc.creatorEisenmann, Yvonne-
Autor(es): dc.creatorDempsey, Laura-
Autor(es): dc.creatorMoore, Kirsten J-
Autor(es): dc.creatorBolt, Sascha R-
Autor(es): dc.creatorMeijers, Judith MM-
Autor(es): dc.creatorDekker, Natashe Lemos-
Autor(es): dc.creatorMiyashita, Mitsunori-
Autor(es): dc.creatorNakayama, Takeo-
Autor(es): dc.creatorvan der Steen, Jenny T-
Data de aceite: dc.date.accessioned2025-08-21T17:57:50Z-
Data de disponibilização: dc.date.available2025-08-21T17:57:50Z-
Data de envio: dc.date.issued2025-04-29-
Data de envio: dc.date.issued2024-04-01-
Fonte completa do material: dc.identifierhttp://dx.doi.org/10.1177/02692163241234579-
Fonte completa do material: dc.identifierhttps://hdl.handle.net/11449/298368-
Fonte: dc.identifier.urihttp://educapes.capes.gov.br/handle/11449/298368-
Descrição: dc.descriptionBackground: Advance care planning in dementia includes supporting the person and their family to consider important goals of care. International research reports the importance of psycho-social-spiritual aspects towards end of life. Aim: To develop a multidimensional international palliative care goals model in dementia for use in practice. Design: International Delphi study integrating consensus and evidence from a meta-qualitative study. The Delphi panel rated statements about the model on a 5-point agreement scale. The criteria for consensus were pre-specified. Setting/participants: Seventeen researchers from eight countries developed an initial model, and 169 candidate panellists were invited to the international online Delphi study. Results: Panellists (107; response 63.3%) resided in 33 countries. The model comprised four main care goals: (1) Comfort ensured; (2) Control over function maintained; (3) Identity protected and personhood respected and (4) Coping with grief and loss−person and caregiver supported. The model reflects how needs and care goals change over time with the progression of dementia, concluding with bereavement support. The first version of the model achieved a consensus after which it was slightly refined based on feedback. We did not achieve a consensus on adding a goal of life prolongation, and on use of the model by people with dementia and family themselves. Conclusion: A new palliative care goals model for people with dementia and their families includes relationship aspects for use by professionals and achieved a consensus among a panel with diverse cultural background. The position of life prolongation in relation to palliative care goals needs further research.-
Descrição: dc.descriptionKyoto University Education and Research Foundation-
Descrição: dc.descriptionEuropean Research Council-
Descrição: dc.descriptionH2020 European Research Council-
Descrição: dc.descriptionDepartment of Health Informatics School of Public Health Graduate School of Medicine Kyoto University, Kyoto Prefecture-
Descrição: dc.descriptionRoyal London Hospital and Centre for Psychiatry and Mental health East London NHS Foundation Trust-
Descrição: dc.descriptionWolfson Institute of Population Health Queen Mary University London-
Descrição: dc.descriptionBotucatu Medical School Sao Paulo State University (UNESP, São Paulo-
Descrição: dc.descriptionDepartment of Psychiatric Nursing Tohoku University Graduate School of Medicine, Miyagi-
Descrição: dc.descriptionResearch Department of Primary Care and Population Health University College London-
Descrição: dc.descriptionCenter for Health Technology and Ser- vices Research University of Porto (ESEP/CINTESIS)-
Descrição: dc.descriptionSchool of Nursing McMaster University-
Descrição: dc.descriptionDepartment of Palliative Medicine University Hospital of Cologne-
Descrição: dc.descriptionDepartment of Nursing and Healthcare Technological University of the Shannon: Midlands Midwest-
Descrição: dc.descriptionNational Ageing Research Institute-
Descrição: dc.descriptionMedicine-Royal Melbourne Hospital The University of Melbourne-
Descrição: dc.descriptionTilburg School of Social and Behavioral Sciences Tilburg University, North Brabant-
Descrição: dc.descriptionDepartment of Health Services Research CAPHRI School for Public Health and Primary Care Maastricht University, Limburg-
Descrição: dc.descriptionLiving Lab in Ageing and Long-Term Care-
Descrição: dc.descriptionZuyderland Care Zuyderland Medical Center Sittard-Geleen-
Descrição: dc.descriptionInstitute of Cultural Anthropology and Development Sociology Leiden University, South Holland-
Descrição: dc.descriptionDepartment of Palliative Nursing Health Sciences Tohoku University Graduate School of Medicine, Miyagi-
Descrição: dc.descriptionDepartment of Public Health and Primary Care Leiden University Medical Center, South Holland-
Descrição: dc.descriptionDepartment of Primary and Community Care Radboud University-
Descrição: dc.descriptionCicely Saunders Institute King’s College London-
Descrição: dc.descriptionBotucatu Medical School Sao Paulo State University (UNESP, São Paulo-
Descrição: dc.descriptionEuropean Research Council: Consolidator Grant (Agreement ID 771483)-
Descrição: dc.descriptionH2020 European Research Council: Consolidator Grant (Agreement ID 771483)-
Formato: dc.format457-470-
Idioma: dc.languageen-
Relação: dc.relationPalliative Medicine-
???dc.source???: dc.sourceScopus-
Palavras-chave: dc.subjectadvance care planning-
Palavras-chave: dc.subjectbiopsychosocial-
Palavras-chave: dc.subjectcognitive disorders-
Palavras-chave: dc.subjectDelphi technique-
Palavras-chave: dc.subjectDementia-
Palavras-chave: dc.subjectinterprofessional education-
Palavras-chave: dc.subjectmodel-
Palavras-chave: dc.subjectpalliative care-
Título: dc.titleA palliative care goals model for people with dementia and their family: Consensus achieved in an international Delphi study-
Tipo de arquivo: dc.typelivro digital-
Aparece nas coleções:Repositório Institucional - Unesp

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