Children and adolescents with non-Hodgkin lymphoma in Brazil: A national survey identifies the challenges encountered and documents the diversity of care

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MetadadosDescriçãoIdioma
Autor(es): dc.contributorUniversidade Estadual Paulista (UNESP)-
Autor(es): dc.contributorHospital Martagão Gesteira-
Autor(es): dc.contributorHospital Samaritano Higienópolis-
Autor(es): dc.contributorUniversidade de São Paulo (USP)-
Autor(es): dc.contributorHospital da Criança José de Alencar-
Autor(es): dc.contributorHospital de Amor da Amazônia-
Autor(es): dc.contributorSt Jude Children's Research Hospital-
Autor(es): dc.creatorCosta, Ana Rosa S.-
Autor(es): dc.creatorCosta, Juliana T.-
Autor(es): dc.creatorBreviglieri, Carla Nolasco Monteiro-
Autor(es): dc.creatorMelgares, Lucélia M.P.-
Autor(es): dc.creatorGodinho, Patrick R.-
Autor(es): dc.creatorMetzger, Monika L.-
Data de aceite: dc.date.accessioned2025-08-21T16:37:35Z-
Data de disponibilização: dc.date.available2025-08-21T16:37:35Z-
Data de envio: dc.date.issued2022-04-29-
Data de envio: dc.date.issued2022-04-29-
Data de envio: dc.date.issued2021-12-31-
Fonte completa do material: dc.identifierhttp://dx.doi.org/10.1016/j.htct.2021.11.013-
Fonte completa do material: dc.identifierhttp://hdl.handle.net/11449/231581-
Fonte: dc.identifier.urihttp://educapes.capes.gov.br/handle/11449/231581-
Descrição: dc.descriptionIntroduction: Brazil has many inequities in the healthcare provided nationwide. Therefore, in order to access challenges in treatment, available resources and current practices, to identify barriers in delivering a good quality of care among Brazilian centers treating children and adolescents with Non-Hodgkin Lymphoma (NHL) and to generate a future prospective guideline, a customized online survey was distributed to pediatric hematologists and oncologists across the country. Results: A total of 97 surveys were completed (35% response rate), from 47 cities in all Brazilian regions and 79 units of care, with a median of 1 answer by the center (range 1 - 5). Most respondents work at an institution supported exclusively by public/philanthropic resources (58%), with an average of 5 to 9 new cases/year (49%), and 41% have 4 to 6 oncologists/centers. Additionally, 22% have no easy access to the intensive care unit, 26% have no access to Rasburicase, 28% have no access to Rituximabe as front-line therapy and 41% have unreliable methotrexate monitoring levels. Those differences cannot be explained thoroughly by regional wealth variances, nor by the financing model. Regarding the pathology service, 70% consider having reasonable quality assistance, but the timeframe to deliver diagnosis is satisfactory to 46%. There is no uniform management of care, with the current guideline from the Sociedade Brasileira de Oncologia Pediátrica being adopted by 54 to 59%, depending on the NHL subtype. Conclusion: This study provides insights into the heterogeneity of care among Brazilian centers. Recognizing those diversities will support the design of effective strategies and collaboration nationwide.-
Descrição: dc.descriptionFaculdade de Medicina de Botucatu Universidade Estadual Paulista (UNESP), Av. Prof. Mário Rubens Guimarães Montenegro, s/n, CEP 18618687-
Descrição: dc.descriptionHospital Martagão Gesteira-
Descrição: dc.descriptionHospital Samaritano Higienópolis-
Descrição: dc.descriptionInstituto do Tratamento do Câncer Infantil (ITACI) Hospital das Clínicas Universidade de São Paulo-
Descrição: dc.descriptionHospital da Criança José de Alencar-
Descrição: dc.descriptionFundação Pio-XII Hospital de Amor da Amazônia-
Descrição: dc.descriptionSt Jude Children's Research Hospital-
Descrição: dc.descriptionFaculdade de Medicina de Botucatu Universidade Estadual Paulista (UNESP), Av. Prof. Mário Rubens Guimarães Montenegro, s/n, CEP 18618687-
Idioma: dc.languageen-
Relação: dc.relationHematology, Transfusion and Cell Therapy-
???dc.source???: dc.sourceScopus-
Palavras-chave: dc.subjectBrazil-
Palavras-chave: dc.subjectLymphoma-
Palavras-chave: dc.subjectNon-Hodgkin-
Título: dc.titleChildren and adolescents with non-Hodgkin lymphoma in Brazil: A national survey identifies the challenges encountered and documents the diversity of care-
Tipo de arquivo: dc.typelivro digital-
Aparece nas coleções:Repositório Institucional - Unesp

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