Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

Registro completo de metadados
MetadadosDescriçãoIdioma
Autor(es): dc.contributorUniversity of Northern British Columbia-
Autor(es): dc.contributorProject DAD ANFFAS Trentino Onlus-
Autor(es): dc.contributorUniversity of Stirling-
Autor(es): dc.contributorUniversity of Illinois at Chicago-
Autor(es): dc.contributorNational Task Group in Intellectual Disabilities and Dementia Practices-
Autor(es): dc.contributorNorwegian National Advisory Unit on Ageing and Health-
Autor(es): dc.contributorCharles University-
Autor(es): dc.contributorSãoPaulo State University-
Autor(es): dc.contributorUniversity of Minho-
Autor(es): dc.contributorNorthampton-
Autor(es): dc.contributorEuropean Association of Service providers for Persons with Disabilities (EASPD)-
Autor(es): dc.contributorLearning Disability Wales-
Autor(es): dc.creatorJokinen, Nancy-
Autor(es): dc.creatorGomiero, Tiziano-
Autor(es): dc.creatorWatchman, Karen-
Autor(es): dc.creatorJanicki, Matthew P.-
Autor(es): dc.creatorHogan, Mary-
Autor(es): dc.creatorLarsen, Frode-
Autor(es): dc.creatorBeránková, Anna-
Autor(es): dc.creatorHeloísa Santos, Flávia-
Autor(es): dc.creatorService, Kathy-
Autor(es): dc.creatorCrowe, Jim-
Data de aceite: dc.date.accessioned2022-08-04T22:07:04Z-
Data de disponibilização: dc.date.available2022-08-04T22:07:04Z-
Data de envio: dc.date.issued2022-04-28-
Data de envio: dc.date.issued2022-04-28-
Data de envio: dc.date.issued2018-05-19-
Fonte completa do material: dc.identifierhttp://dx.doi.org/10.1080/01634372.2018.1454563-
Fonte completa do material: dc.identifierhttp://hdl.handle.net/11449/221045-
Fonte: dc.identifier.urihttp://educapes.capes.gov.br/handle/11449/221045-
Descrição: dc.descriptionThis article, an output of the 2016 International Summit on Intellectual Disability and Dementia, examines familial caregiving situations within the context of a support-staging model for adults with intellectual disability (ID) affected by dementia. Seven narratives offer context to this support-staging model to interpret situations experienced by caregivers. The multidimensional model has two fundamental aspects: identifying the role and nature of caregiving as either primary (direct) or secondary (supportive); and defining how caregiving is influenced by stage of dementia. We propose staging can affect caregiving via different expressions: (1) the “diagnostic phase,” (2) the “explorative phase,” (3) the “adaptive phase,” and (4) the “closure phase.” The international narratives illustrate direct and indirect caregiving with commonality being extent of caregiver involvement and attention to the needs of an adult with ID. We conclude that the model is the first to empirically formalize the variability of caregiving within families of people with ID that is distinct from other caregiving groups, and that many of these caregivers have idiosyncratic needs. A support-staging model that recognizes the changing roles and demands of carers of people with ID and dementia can be useful in constructing research, defining family-based support services, and setting public policy.-
Descrição: dc.descriptionSchool of Social Work University of Northern British Columbia-
Descrição: dc.descriptionProject DAD ANFFAS Trentino Onlus-
Descrição: dc.descriptionFaculty of Health Sciences and Sport University of Stirling-
Descrição: dc.descriptionDepartment of Disability and Human Development University of Illinois at Chicago-
Descrição: dc.descriptionNational Task Group in Intellectual Disabilities and Dementia Practices-
Descrição: dc.descriptionNorwegian National Advisory Unit on Ageing and Health-
Descrição: dc.descriptionCentre of Expertise in Longevity and Long-term Care Charles University-
Descrição: dc.descriptionDepartment of Psychology SãoPaulo State University-
Descrição: dc.descriptionDepartment of Basic Psychology University of Minho-
Descrição: dc.descriptionNurse Practitioner Consultant Northampton-
Descrição: dc.descriptionEuropean Association of Service providers for Persons with Disabilities (EASPD)-
Descrição: dc.descriptionLearning Disability Wales-
Formato: dc.format411-431-
Idioma: dc.languageen-
Relação: dc.relationJournal of Gerontological Social Work-
???dc.source???: dc.sourceScopus-
Palavras-chave: dc.subjectcaregivers-
Palavras-chave: dc.subjectcaregiving-
Palavras-chave: dc.subjectDementia-
Palavras-chave: dc.subjectDown syndrome-
Palavras-chave: dc.subjectintellectual disability-
Palavras-chave: dc.subjectnarratives-
Título: dc.titlePerspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia-
Tipo de arquivo: dc.typelivro digital-
Aparece nas coleções:Repositório Institucional - Unesp

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