COVID-19 in people with multiple sclerosis: A global data sharing initiative

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Autor(es): dc.contributorHasselt University-
Autor(es): dc.contributorUniversity Medical Center Göttingen-
Autor(es): dc.contributorMS International Federation-
Autor(es): dc.contributorKU Leuven-
Autor(es): dc.contributorThe University of Melbourne-
Autor(es): dc.contributorCHU Pontchaillou-
Autor(es): dc.contributorQMENTA-
Autor(es): dc.contributorSwedish MS Registry-
Autor(es): dc.contributorAccelerated Cure Project for MS-
Autor(es): dc.contributorNeuroTransData-
Autor(es): dc.contributorMS Forschungs- und Projektentwicklungs-gGmbH-
Autor(es): dc.contributorUK MS Register-
Autor(es): dc.contributorWashington University in St. Louis-
Autor(es): dc.contributorUSA/National Multiple Sclerosis Society-
Autor(es): dc.contributorHospital Universitario de CEMIC-
Autor(es): dc.contributorMonash University-
Autor(es): dc.contributorUniversity of Tasmania-
Autor(es): dc.contributorBulgarian SmartMS COVID-19 Dataset-
Autor(es): dc.contributorKatholisches Klinikum Bochum-
Autor(es): dc.contributorBrazilian Multiple Sclerosis Association (ABEM)-
Autor(es): dc.contributorCleveland Clinic-
Autor(es): dc.contributorIcometrix – Icompanion-
Autor(es): dc.contributorQueen Mary University of London-
Autor(es): dc.contributorUniversity Hospital Rigshospitalet-
Autor(es): dc.contributorUniversidade Estadual Paulista (Unesp)-
Autor(es): dc.contributorRELACOEM-
Autor(es): dc.contributorEMA-
Autor(es): dc.contributorHospital Británico de Buenos Aires – EMA-
Autor(es): dc.contributorStrasbourg University Hospital-
Autor(es): dc.contributorCOVISEP-
Autor(es): dc.contributorOspedale San Raffaele-
Autor(es): dc.contributorRoyal Melbourne Hospital-
Autor(es): dc.contributorSorbonne University-
Autor(es): dc.contributorImperial College London-
Autor(es): dc.contributorSwansea University-
Autor(es): dc.contributorRamos Mejia Hospital – EMA-
Autor(es): dc.creatorPeeters, Liesbet M-
Autor(es): dc.creatorParciak, Tina-
Autor(es): dc.creatorWalton, Clare-
Autor(es): dc.creatorGeys, Lotte-
Autor(es): dc.creatorMoreau, Yves-
Autor(es): dc.creatorDe Brouwer, Edward-
Autor(es): dc.creatorRaimondi, Daniele-
Autor(es): dc.creatorPirmani, Ashkan-
Autor(es): dc.creatorKalincik, Tomas-
Autor(es): dc.creatorEdan, Gilles-
Autor(es): dc.creatorSimpson-Yap, Steve-
Autor(es): dc.creatorDe Raedt, Luc-
Autor(es): dc.creatorDauxais, Yann-
Autor(es): dc.creatorGautrais, Clément-
Autor(es): dc.creatorRodrigues, Paulo R-
Autor(es): dc.creatorMcKenna, Landon-
Autor(es): dc.creatorLazovski, Nikola-
Autor(es): dc.creatorHillert, Jan-
Autor(es): dc.creatorForsberg, Lars-
Autor(es): dc.creatorSpelman, Tim-
Autor(es): dc.creatorMcBurney, Robert-
Autor(es): dc.creatorSchmidt, Hollie-
Autor(es): dc.creatorBergmann, Arnfin-
Autor(es): dc.creatorBraune, Stefan-
Autor(es): dc.creatorStahmann, Alexander-
Autor(es): dc.creatorMiddleton, Rodden-
Autor(es): dc.creatorSalter, Amber-
Autor(es): dc.creatorBebo, Bruce F-
Autor(es): dc.creatorRojas, Juan I-
Autor(es): dc.creatorvan der Walt, Anneke-
Autor(es): dc.creatorButzkueven, Helmut-
Autor(es): dc.creatorvan der Mei, Ingrid-
Autor(es): dc.creatorIvanov, Rumen-
Autor(es): dc.creatorHellwig, Kerstin-
Autor(es): dc.creatorSciascia do Olival, Guilherme-
Autor(es): dc.creatorCohen, Jeffrey A-
Autor(es): dc.creatorVan Hecke, Wim-
Autor(es): dc.creatorDobson, Ruth-
Autor(es): dc.creatorMagyari, Melinda-
Autor(es): dc.creatorBrum, Doralina Guimarães [UNESP]-
Autor(es): dc.creatorAlonso, Ricardo-
Autor(es): dc.creatorNicholas, Richard-
Autor(es): dc.creatorBauer, Johana-
Autor(es): dc.creatorChertcoff, Anibal-
Autor(es): dc.creatorde Sèze, Jérôme-
Autor(es): dc.creatorLouapre, Céline-
Autor(es): dc.creatorComi, Giancarlo-
Autor(es): dc.creatorRijke, Nick-
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Descrição: dc.descriptionBackground: We need high-quality data to assess the determinants for COVID-19 severity in people with MS (PwMS). Several studies have recently emerged but there is great benefit in aligning data collection efforts at a global scale. Objectives: Our mission is to scale-up COVID-19 data collection efforts and provide the MS community with data-driven insights as soon as possible. Methods: Numerous stakeholders were brought together. Small dedicated interdisciplinary task forces were created to speed-up the formulation of the study design and work plan. First step was to agree upon a COVID-19 MS core data set. Second, we worked on providing a user-friendly and rapid pipeline to share COVID-19 data at a global scale. Results: The COVID-19 MS core data set was agreed within 48 hours. To date, 23 data collection partners are involved and the first data imports have been performed successfully. Data processing and analysis is an on-going process. Conclusions: We reached a consensus on a core data set and established data sharing processes with multiple partners to address an urgent need for information to guide clinical practice. First results show that partners are motivated to share data to attain the ultimate joint goal: better understand the effect of COVID-19 in PwMS.-
Descrição: dc.descriptionMultiple Sclerosis International Federation-
Descrição: dc.descriptionBiomedical Research Institute and Data Science Institute Hasselt University-
Descrição: dc.descriptionDepartment of Medical Informatics University Medical Center Göttingen-
Descrição: dc.descriptionMS International Federation-
Descrição: dc.descriptionESAT-STADIUS KU Leuven-
Descrição: dc.descriptionBiomedical Research Institute and Data Science Institute Hasselt University Diepenbeek Belgium/ESAT-STADIUS KU Leuven-
Descrição: dc.descriptionClinical Outcomes Research (CORe) Unit The University of Melbourne-
Descrição: dc.descriptionDepartment of Neurology CHU Pontchaillou-
Descrição: dc.descriptionNeuroepidemiology Unit Melbourne School of Population Global Health The University of Melbourne-
Descrição: dc.descriptionDepartment of Computer Science and Leuven.AI KU Leuven-
Descrição: dc.descriptionQMENTA-
Descrição: dc.descriptionDepartment of Clinical Neuroscience Swedish MS Registry-
Descrição: dc.descriptioniConquerMS People-Powered Research Network Accelerated Cure Project for MS-
Descrição: dc.descriptionNeuroTransData Study Group NeuroTransData-
Descrição: dc.descriptionMS Forschungs- und Projektentwicklungs-gGmbH-
Descrição: dc.descriptionUK MS Register-
Descrição: dc.descriptionCOViMS St Louis USA/ Division of Biostatistics Washington University in St. Louis-
Descrição: dc.descriptionCOViMS USA/National Multiple Sclerosis Society-
Descrição: dc.descriptionNeurology Department Hospital Universitario de CEMIC-
Descrição: dc.descriptionMSBase Registry Department of Neuroscience Central Clinical School Monash University-
Descrição: dc.descriptionThe Australian MS Longitudinal Study (AMSLS) Menzies Institute for Medical Research University of Tasmania-
Descrição: dc.descriptionBulgarian SmartMS COVID-19 Dataset-
Descrição: dc.descriptionLEOSS Department of Neurology Katholisches Klinikum Bochum-
Descrição: dc.descriptionBrazilian Multiple Sclerosis Association (ABEM)-
Descrição: dc.descriptionCleveland Clinic MS COVID-19 Registry Mellen MS Center Cleveland Clinic-
Descrição: dc.descriptionIcometrix – Icompanion-
Descrição: dc.descriptionOptimiseMS Preventive Neurology Unit Queen Mary University of London-
Descrição: dc.descriptionThe Danish Multiple Sclerosis Registry Department of Neurology University Hospital Rigshospitalet-
Descrição: dc.descriptionUniversidade Estadual Paulista (Unesp) Faculdade de Medicina Botucatu/REDONE – Brazilian Registry of Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorders-
Descrição: dc.descriptionRELACOEM-
Descrição: dc.descriptionMental Health Area EMA-
Descrição: dc.descriptionMS and Demyelinating Diseases Hospital Británico de Buenos Aires – EMA-
Descrição: dc.descriptionDepartment of Neurology Strasbourg University Hospital-
Descrição: dc.descriptionCOVISEP-
Descrição: dc.descriptionInstitute of Experimental Neurology Ospedale San Raffaele-
Descrição: dc.descriptionMelbourne MS Centre Department of Neurology Royal Melbourne Hospital-
Descrição: dc.descriptionInstitut du Cerveau ICM APHP – Hôpital Pitié Salpêtrière Sorbonne University-
Descrição: dc.descriptionMenzies Institute for Medical Research University of Tasmania-
Descrição: dc.descriptionImperial College London-
Descrição: dc.descriptionSwansea University-
Descrição: dc.descriptionMultiple Sclerosis University Center Ramos Mejia Hospital – EMA-
Descrição: dc.descriptionUniversidade Estadual Paulista (Unesp) Faculdade de Medicina Botucatu/REDONE – Brazilian Registry of Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorders-
Formato: dc.format1157-1162-
Idioma: dc.languageen-
Relação: dc.relationMultiple Sclerosis Journal-
???dc.source???: dc.sourceScopus-
Palavras-chave: dc.subjectcoronavirus 2-
Palavras-chave: dc.subjectCOVID-19-
Palavras-chave: dc.subjectdata collection-
Palavras-chave: dc.subjecthumans-
Palavras-chave: dc.subjectMultiple sclerosis-
Palavras-chave: dc.subjectpandemics-
Palavras-chave: dc.subjectregistries-
Título: dc.titleCOVID-19 in people with multiple sclerosis: A global data sharing initiative-
Tipo de arquivo: dc.typelivro digital-
Aparece nas coleções:Repositório Institucional - Unesp

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