Mapping the unmet informational needs of young portuguese female cancer survivors: psychometric validation of a multidimensional scale

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MetadadosDescriçãoIdioma
Autor(es): dc.creatorAlmeida, Luana-
Autor(es): dc.creatorBártolo, Ana-
Autor(es): dc.creatorMonteiro, Sara-
Autor(es): dc.creatorSilva, Isabel-
Autor(es): dc.creatorConde, Ana-
Autor(es): dc.creatorAraújo, Alexandre-
Autor(es): dc.creatorLourenço, Luiz-
Autor(es): dc.creatorSantos, Isabel-
Data de aceite: dc.date.accessioned2026-08-11T12:30:59Z-
Data de disponibilização: dc.date.available2026-08-11T12:30:59Z-
Data de envio: dc.date.issued2026-01-12-
Data de envio: dc.date.issued2026-01-12-
Data de envio: dc.date.issued2024-
Fonte completa do material: dc.identifierhttp://hdl.handle.net/10400.2/20783-
Fonte completa do material: dc.identifierhttps://doi.org/10.3390/healthcare13141757-
Fonte: dc.identifier.urihttp://educapes.capes.gov.br/handle/10400.2/20783-
Descrição: dc.descriptionBackground/Objectives: Young female cancer survivors often face specific informational needs related to the physical and emotional effects of cancer and its impact on life plans, particularly fertility and parenthood. However, few tools are tailored to assess these needs during this critical life stage. This study aimed to (i) validate a multidimensional measure—the Satisfaction with Information Provided to Young Oncology Patients Scale (SIPYF-CPS)—to assess the specific informational needs of young adult female cancer survivors; and (ii) explore preferences regarding the provision of information and counseling. Methods: A total of 124 women (M[age] = 38.18; SD = 5.49; range 21–45), 76.6% diagnosed with breast cancer, participated in the study. Psychometric analyses included exploratory factor analysis and correlation coefficients to assess reliability and construct validity. Convergent validity was evaluated through standardized measures of anxiety, reproductive concerns, and quality of life. Results: A final 22-item measure demonstrated strong reliability and validity, capturing four factors: (i) Disease-Related Information, (ii) Symptoms and Functional Limitations, (iii) Implications for Fertility and Parenthood, and (iv) Support Services. Participants expressed low satisfaction with information on fertility preservation, sexual health, and support services. Lower satisfaction was moderately associated with higher anxiety and depression while positively related to quality of life. Most participants preferred phased, face-to-face communication throughout the illness trajectory. Conclusions: The SIPYF-CPS is a valid, multidimensional tool that captures the complex and evolving informational needs of young female cancer survivors. Its clinical use may promote earlier, personalized, and emotionally responsive communication—supporting psychological well-being, informed decision-making, and long-term survivorship care.-
Formato: dc.formatapplication/pdf-
Idioma: dc.languageen-
Direitos: dc.rightshttp://creativecommons.org/licenses/by/4.0/-
Palavras-chave: dc.subjectInformation needs-
Palavras-chave: dc.subjectOncology-
Palavras-chave: dc.subjectValidity-
Palavras-chave: dc.subjectReliability-
Palavras-chave: dc.subjectSIPYF-CPS-
Título: dc.titleMapping the unmet informational needs of young portuguese female cancer survivors: psychometric validation of a multidimensional scale-
Aparece nas coleções:Repositório Aberto - Universidade Aberta (Portugal)

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